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Located in: Drug Reviews and Ratings | RELIEF OF PAIN
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ELMIRON (PENTOSAN POLYSULFATE SODIUM) reviews and ratings reportsThe average rating for ELMIRON (PENTOSAN POLYSULFATE SODIUM):
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Key to ratings for ELMIRON (PENTOSAN POLYSULFATE SODIUM): |
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If you want to share your experience on ELMIRON (PENTOSAN POLYSULFATE SODIUM) please, specify the following details: 1 Sex. 2 Age. 3 Side effects. 4 Time taken and dosage. 5 Review. |
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IC
by Reviewer93428
on July 5, 2010
Sex: F
Age: 62.0 Side effects: No bad effects; one positive effect - my osteoarthritis is much improved. Pain in hip joints that made it hard to walk after about 20 minutes has disappeared. Mobility greatly improved. Don't understand this. Went off Elmiron for 3 months. The joint pain reappeared. When I had to go back on Elmiron, the hip pain disappeared again. I've contacted the company that makes Elmiron about this. Think some research needs to be done. This may be an effect only with me. Time taken and dosage: 28 months100 mg 2X D Review: Was in pain for about 2 years before I finally found someone who could help. Could not move without causing pain. Frequent urination. Symptoms similar to others on this site. Took a road trip of about 800 miles and found riding to be excruciating. When we got back before we even drove home, I'd called the doctor and went straight to his office. Not much relief or understanding. I had a hard time finding someone who could make an accurate diagnosis and offer treatment that gave relief. Took Elmiron for nearly 4 months before I had any relief from the pain. My urologist started me on four 100mg capsules a day. After 2 years, I started to decrease my dosage since I worry about side effects. Went to 3 pills per day, then 2, then 1, and finally went off all together. Have started back up in the last few weeks. Only taking 2 per day now. No bladder pain now.
Review
by Reviewer93430
on June 10, 2010
Sex: F
Age: 23.0 Side effects: Easy brusing, stomach burning, thats about it!! Time taken and dosage: 2 months100mgs 3X D Review: This drug has helped me a great deal, or so I think it is this drug I am soon to find out. I hate taking drugs, I feel like they help with something and hurt something else so I am going to keep looking for natural ways to cure this... I am not giving up! But for right now I am glad that at least something helped with little side effects. I am concerned however about my stomach burning I do not want this medicine to cause me stomach problems. Getting back to wether I dont know if this is what is really helping me, I am going to find out when I stop taking it in another month... I just plan Another reason might be that I have also changed my life and my diet. Things that I have seen aggravate my IC are ALCOHOL,SODA,AND COFFEE! I feel that SODA is the worst, we drink too much SODA! it is so bad for us, specially black soda and diet .I sucked to find this out cause I love soda 3-5 times a day! oh well I have to do what's better for my health. I love all of these but it is not worth it. I can't cheat drinking these cause I pay for it later. Here is a website that I hope can help you guys, it was life changing for me and they helped me when I was very,very depressed. WWW.IC-NETWORK.COM This illness is embarrasing for me, I feel like I can't find work because I always have to go to the bathroom,and I don't know how some of you deal with it. But the web site I mentioned helped me A LOT! It's my life and my body and we have to find something... I have changed my diet tr
IC
by Reviewer93431
on May 12, 2010
Sex: F
Age: 54.0 Side effects: No side-effects at all. Took about 6 months for most of the pain to stop. Now I have none except when I get stressed out and am on my feet alot with loss of sleep, which seems to happen about once a month. Time taken and dosage: 3 years200MG 1X D Review: The doc also prescribed phenazoptridine for the pain. They are those pills that turn your urine orange when you have a bladder infection. Take them about once a month for maybe 2 days. They are wonderful for me. I can go hours without even thinking of going to the bathroom. Takes away the constant urge 
IC
by Reviewer93432
on April 8, 2010
Sex: F
Age: 45.0 Side effects: After taking this drug for 3 years, I finally realized that this drug was irritating my bladder. After I stopped taking it, my frequency improved greatly. Time taken and dosage: 3 years100mg 3X D Review: 
IC
by Reviewer93433
on March 18, 2010
Sex: F
Age: 53.0 Side effects: GI problems; stomach, bowels. Time taken and dosage: 6 months100 MG 3X D Review: My doctor prescribed this along with Meloxicam, which is a strong anti-inflammatory for rheumatoid and osteoarthritis. Between the 2 of them, they worked very well for the IC pain but one or both appear to have done some serious GI damage, and I am now undergoing many tests to try to track it down. I was OK before I started these. For years, I have found Zantac 150 (yes, the OTC antacid) 2 - 3 times a day to be very helpful for my IC. When I told my doctor, he said, sure, because IC is a histamine response of the body and Zantac works against histamine. So I went back to it. Zantac by itself does not work as well as Elmiron, but it helps a lot and I don't have the side effects like I did with Elmiron. I also used to take Cystoprotek and found that helpful as well; will start again with Zantac 150 and leave the scary drugs alone. Best wishes to all who have this awful condition. 
ic
by Reviewer93434
on March 16, 2010
Sex: F
Age: 29.0 Side effects: SEVER BLOATING, SWELLING IN ARMS, ABDOMEN, AND LEGS. HEADACHES, LUMP FEELING IN THROAT, NAUSEA, ACID REFLUX, DIZZYNESS, TIREDNESS, NO ENERGY Time taken and dosage: 3 months100MG x2 2X D Review: IT DOES SEEM TO HELP MY IC SOME, BUT THE OTHER SIDE EFFECTS TOGETHER ARE A LOT WORSE THAN THE IC, AS HORRIBLE AS THE PAIN IS WITH IC. I THINK I AM GONNA STOP. I HAVE EVERY TEST RAN ON ME, AND THE ONLY CONCLUSION WE COME TO IS THIS MED
IC
by Reviewer93436
on February 22, 2010
Sex: F
Age: 42.0 Side effects: Swollen tongue, feeling irritation inside my mouth and numbming oan tingling feeling inside mouth Time taken and dosage: 5 years100 mg 3X D Review:
Hypercoagulation and IC
by Reviewer93437
on February 7, 2010
Sex: F
Age: 42.0 Side effects: Hair loss started at 6 months... all over not just one spot. Time taken and dosage: 7 months 3X D Review: It seemed to help my IC mildly. As a blood thinner, it is not very strong. I am really bummed about the hair loss! It looks pretty awful- about half gone and it is not letting up so I am going to stop this medication. 
IC
by Reviewer93438
on February 4, 2010
Sex: M
Age: 62.0 Side effects: Some dizziness when standing and IBS but the worst experience was a ponding heart beat that occured after about 2 years. I opted to stop the meds and the pounding stopped. Time taken and dosage: 2 months200 mg 2X D Review: While I used the drug it seemed to work well and eliminate the problem but the pounding heart beat was too much to take and I stopped the drug.
IC
by Reviewer93439
on January 25, 2010
Sex: M
Age: 59.0 Side effects: So far just headaches, and they went away after the 3rd day. I shave my head so I'm not sure regarding any hair loss. Had to go to 3 different Urologists before I found one that knew about this drug. Time taken and dosage: 5 days Review: I urinate 17 to 20 times a day. I'm happy if I can sleep 2 hours straight before having to get up. Problem is I brought this on myself. I went dehydrated while overseas. I'm never thirsty, don't even drink with meals so when I started urinating blood clots that got my attention.I now have IC. Now that I know which foods to stay away from I can pretty much control the pain, I just need a decent nights sleep. Looking like a zombie is starting to scare people.
I C
by Reviewer93440
on January 21, 2010
Sex: F
Age: 54.0 Side effects: I have never taken it . . . Time taken and dosage: 0 days Review: I have had IC for about 6 years, came right at menopause . . . I haven't ever taken this drug, but wanted everyone to know that ACUPUNCTURE can be VERY helpful, and there's no harmful side effects - please consider giving it a try! Just make sure you find a licensed, knowledgable practitioner. I go once a month, cost is $85 for about a 1 1/2 hour session. If you're lucky your insurance may cover it.
IC
by Reviewer93441
on January 2, 2010
Sex: F
Age: 25.0 Side effects: Horrible Headache , Difficult to Swallow. Time taken and dosage: 6 months Review: The side effects out weigh the supposid benefits , of which I saw None. Stopped out of Frustration.
IC
by Reviewer93442
on December 16, 2009
Sex: F
Age: 45.0 Side effects: Headache initially, but that subsided. Time taken and dosage: 1 months Review: I felt better by the end of the first month, but I stopped because it was so expensive. $300 for a one month supply with my health ins. prescription card. I'll try to treat this with diet until a generic becomes available at a reasonable price.
IC
by Reviewer93443
on December 7, 2009
Sex: M
Age: 33.0 Side effects: CONSTANT HEADACHE, FEEL TIRED ALL THE TIME, I AM FOLLOWED BY A PHYSICIAN REGARDING HIGH LEVEL OF TROMBOCYTIS IN MY BLOOD.. MIGHT BE CAUSED BY ELMIRON BUT UNCERTAIN AT THE MOMENT ( WOULD BE THE FIRST TIME... . ELMIRON HAS RELIEVE MY IC SYMPTOMS URINATION FREQUENCY DROP FROM 25X A DAY TO ABOUT 10. Time taken and dosage: 15 months Review:
IC
by Reviewer93444
on December 5, 2009
Sex: F
Age: 56.0 Side effects: NO side effects. Time taken and dosage: Review: Elmiron Really helped me, it took a few mos. I am pretty much symptom free now. Haved taken it for 16 mos, able to cut down to once per day. Also a big help is the supplement CystoProtek, available online.......my uro clinic says other patients report that helps them a lot too. Those who can't take Elmiron may want to try the CystoProtek....formulated by top IC researchers.
Interstitial Cystitis
by Reviewer93445
on November 23, 2009
Sex: F
Age: 34.0 Side effects: I would say none, but after reading everyone else's side effects, there are two things I experience that could be attributable to the Elmiron: I bruise fairly easily and sometimes get some really nasty ones. I've always assumed it was because I'm borderline anemic. Also, I've noticed over the last two years or so, when I get a headache (usually the result of a hangover or the flu), they are excruciating, and often don't completely go away for two or three days. Perhaps the Elmiron just makes the headaches more intense, as I said, they are always triggered by something else. Time taken and dosage: 6 years Review: I now eat and drink just about anything I want. I do notice a few things still affect me, but this drug is fantastic! I never experience pain during intercourse anymore and the frequency of my urination is usually normal. I do notice if I stop taking it for a couple of days or only take it sporadically, my symptoms begin to return. Once I'm back on track, they disappear again. I will gladly keep taking it for the rest of my life.
IC Bladder Ulcers
by Reviewer93446
on November 18, 2009
Sex: M
Age: 57.0 Side effects: Sore throat , headache , sinus pain , diarrhea , and minor hair loss. Time taken and dosage: 3 weeks Review: This medication has many side effects for me.
IC
by Reviewer93447
on November 8, 2009
Sex: F
Age: 55.0 Side effects: Hair loss. Possible skin problems. Time taken and dosage: 4 months Review: Definite problems with hair loss. I'm not sure if the peeling skin on my hands and rash on my arm is a result of the medication or something else. My doctor has recommended that I discontinue taking the medicine.
IC
by Reviewer93448
on November 3, 2009
Sex: F
Age: 53.0 Side effects: headaches at first, stopped after 2 mos Time taken and dosage: 3 days Review: It has given me my life back.
Interstitial cystitis
by Reviewer93449
on October 27, 2009
Sex: F
Age: 17.0 Side effects: none Time taken and dosage: 1.5 years Review: Has helped the burning. Still have frequency, but feel much better. Also taking elavil and following the IC diet. This combo works well. Able to sleep through the night
Bladder Ulcers I.C.
by Reviewer93450
on October 24, 2009
Sex: F
Age: 52.0 Side effects: Sore Raw Throat , Pounding Headache , Burning Sinus Pain , Diarrhea. Neck aches. Time taken and dosage: 13 days Review: This post is in addition to my couple just below.I will have to stop the Elmiron.The side effects are making me real sick. As soon as I take it , my throat is raw , my head pounds and my sinus's burn and I get Diarrhea.Even dumping it in water is worthless.The IC Network support forum says it's the capsule that irritaes the stomach not the contents.Either way , I am sick.Going to have to go back and see the Urologist and seek alternatives for IC. I already hear there is No alternatives to heal your bladder.I don't know what to do. I need help.
I.C.
by Reviewer93451
on October 21, 2009
Sex: M
Age: 65.0 Side effects: At first no side effects, but after several months began having strong urge for BM and has stayed that way. Not diarrhea exactly, but am concerned this might have bad consequences in the long run. Have had to stop taking it recently because IBS systoms have returned. Time taken and dosage: 5 years Review: I have taken elmiron for five years and it has helped. No more bladder pain. Have changed my diet, eliminating high potassium foods as much as possible. Take it three times a day, 100mg capsules. Had to start dumping powder into the water, though, the capsule itself was irritating my stomach. I suffered with IBS for many years and it seemed that elmiron helped get rid of that. For a long time I felt really good and was able to enjoy eating again and had regular bowel movements. However,beginning last month,I began experiencing IBS again. When I stop taking elmiron the IBS symptoms go away.I'll be seeing my urologist next week and see what he recommends.
Bladder Ulcers ( IC)
by Reviewer93452
on October 18, 2009
Sex: F
Age: 52.0 Side effects: Another update to my 2 post just below.I have been on this medication 6 days as of Sunday the 18th.I joined a support group for IC and was told that you must empty the Elmiron capsule into a small glass of water. That'll help eliminate the sore throat issue.It's the capsule itself that causes a sore throat ( Odd ). Time taken and dosage: 6 days Review: I did find out from my IC support group , Elmiron is NOT a Cure for IC , it only helps you live with it.IC is UnCurable. Just Managable with Elmiron (and Urelle/Darpaz)
Bladder Ulcers ( I.C )
by Reviewer93453
on October 16, 2009
Sex: F
Age: 52.0 Side effects: This is an update to my post below , in addition to the sore throat , I now have a headache , and bad Diarrhea. Time taken and dosage: 5 days Review: Called the Uro doctor and let him know about these side effects , he said I have to stay on this medication , as this is the only thing that will heal my bladder ulcers.And unfortunatly , I'll just have to learn to tollerate the 3 side effects.This is Horrible.
Bladder Ulcers ( I .C )
by Reviewer93454
on October 13, 2009
Sex: F
Age: 52.0 Side effects: I have only been on this stuff 2 days and I have a real bad sore throat.Other then that , No wierd side effects yet.I hope it works quick. Urologist said 3 to 6 months to notice any improvement.That's along time to be miserable. Time taken and dosage: 2 days Review: I just hope it works . 30 capsules is $375.00I will be on it atleast 2 years the Urologist said.
I.C
by Reviewer93455
on October 8, 2009
Sex: F
Age: 39.0 Side effects: I finally started taking Elmiron a couple of weeks ago and stopped after about a week when I began to feel nausea, diarrhea and thought maybe I had a bug since the season is changing..I also experienced abdominal pain and it seemed as though I was going to the restroom more than I had before at night. I stopped taking it and the side effects went away..I stopped because I wanted to be sure that it was the side effects and not just me feeling sick. However, for those of you that have been taking this drug longer, do we HAVE to take this forever? What is the consequence if the I.C. if not treated? My doctor tells me that it won't become cancer or anything terminal, is this true? I want to make sure that if I stop taking this drug that I.C. won't turn into something WORSE!! I welcome any responses or advice! Thanks so much! Time taken and dosage: 5 days Review:
IC
by Reviewer93456
on October 2, 2009
Sex: F
Age: 44.0 Side effects: Hair loss, gas, headaches, very emotional. Time taken and dosage: 180 days Review: It does work. It took less than 3 months for me. I think I took it less the a year overall. Since my bladder was built back up I went off it and becoming a nervous wreak with hair loss not okay with me I don't like the side effects, so when I have a reoccurrence I take freeze dried aloevera pills from Desert Harvest. They work the same without the side effects so you can take them forever. I am so thrilled.
IC
by Reviewer93457
on October 1, 2009
Sex: F
Age: 28.0 Side effects: I've been on Elmiron for 10 months and started experiencing diarrhea a couple of weeks after I started treatment. Loose stools and cramping hasn't gotten better. From your experience, will this sideffect ever go away or am I stuck with embarassing races to the restroom or have bladder pain the rest of my life? Time taken and dosage: 10 months Review:
IC - interstitial cystitis
by Reviewer93458
on September 23, 2009
Sex: F
Age: 24.0 Side effects: NONE Time taken and dosage: 3 months Review: I had my disease 6 months, began to take Elmiron - my disease was gone completely in 2 months. If you take YAZ and experience IC - it might be some connection here, because Yaz cause high potassium level. Please, e-mail me if you began to have IC after taking YAZ
IC
by Reviewer93459
on September 18, 2009
Sex: M
Age: 38.0 Side effects: The skin under my armpits started to peel off, and this is starting to happen anywhere I sweat and skin touches. Time taken and dosage: 2 months Review:
Severe Interstitial Cystitis
by Reviewer93460
on September 14, 2009
Sex: F
Age: 26.0 Side effects: Slight hair loss, bloating, weight gain, diarrhea. Time taken and dosage: 3 years Review: I went from taking no medication and not being able to walk across the room, and having to urinate over 100 times a day with blood in my urine to taking Elmiron 400mg total a day and feeling MASSIVE relief. I still deal with diarrhea and the other side effects are far less severe, but if I take the medication with enough time before and after eating, I feel normal. I still have to follow a low acid diet, and I use Prelief which is an amazing partner with Elmiron. My IC doctor suggested it, and the bloating and diarrhea are almost not happening. Sometimes hard to tell if weight gain is caused from IC or endometriosis that I also have but this drug has been an amazing help, and has given me my life back.
bladder pain
by Reviewer93461
on September 12, 2009
Sex: F
Age: 62.0 Side effects: alopecia which began after about 3 months; hair loss (in one unnoticeable area) stopped after one year; no impact on my historically low blood pressure; perhaps abdominal bloating Time taken and dosage: 2 years Review: alleviated the nighttime pain I experienced that radiated down my legs; in so doing lessened frequency of nighttime bathroom visits from 5 - 6 to 1 or 2(max)
Interstitial Cystitis (IC)
by Reviewer93462
on September 10, 2009
Sex: M
Age: 39.0 Side effects: None. Frequency dropped like a rock. Now I only have to go 25x a day. Time taken and dosage: 7 years Review: I too am one of those rare guys with IC. For years I thought I had a urinary tract infection, but they kept telling me no. Then, fortunately, I accidently stumbled upon an Urologist who specializes in IC. He had me pegged in 15 min (three different tests/later confirmed after they scoped the bladder. The doctor put me on a three drug cocktail (Amitriptyline, hydroxizine, and this Pentosan Polysulfate). Doctor told me it might take a couple months to realize the effects. Wooo Hooo! That night I noticed it working. This drug is great. However, like many I have read, I really only need to take 100mg 2x a day. Until there is a cure, I would recommend you try this drug. And if you still wake up 3 or 4 times a night, I would ask your doctor to see about raising the Amitriptyline (50mg does the thing for me).
IC
by Reviewer93463
on August 13, 2009
Sex: F
Age: 40.0 Side effects: None - except for possible conjunctivitis (pink eye) but I've had eye issues before so it's possible it's not from taking this drug. Time taken and dosage: 3 months Review: This medicine worked like a miracle for me. My doctor put me on this AND Vesicare. Within 2 weeks my pain was gone and I was urinating less. I have since come off the Vesicare and I am still doing well on the Elmiron. For me, it has been a blessing.
ic
by Reviewer93464
on July 22, 2009
Sex: F
Age: 34.0 Side effects: hair thinning/lose, irritable bowel,dry eye,reflux these are the worst. dont sweat the small stuff like headache,nausea but good news your bladder feels good ! Time taken and dosage: 6 years Review: i continue the med cuz i'm scared to stop after 6 years im pretty sick of it but dont ever want that pain again. i feel I got a touch of o.c.d from worring so much especially about my hair.im constantly looking in mirrors and feeling my hair to make shur its still there.even at night. am i the only one ?
IC
by Reviewer93465
on July 15, 2009
Sex: F
Age: 29.0 Side effects: BEFORE Elmiron: uncomfortable urination as often as every 10 minutes, but not much volume. If I was lucky, I could hold my urine for about 30 minutes. Exhausted from nocturia. Lots of UTIs. Terribly strict diet. Time taken and dosage: 2 months Review: ELMIRON works for me immensely. I took it for a year three years ago when I was going through chemotherapy (which caused the IC). Now that I'm undergoing chemo again, I'm back on Elmiron, and once again, Elmiron has worked its magic. I can sleep at night, and can have a functional day without urinating every few minutes. WONDERFUL.
IC
by Reviewer93466
on July 14, 2009
Sex: F
Age: 35.0 Side effects: I started taking Elmiron about 4 days ago, on the second day I noticed I could not sleep. I am on day 4 and I have had about 8 hours total of sleep, when I take the medication, my BP and heatrate rises. I feel like my heart will beat out of my chest and I am wired like I am on speed or something. I am hoping these symptoms will subside and my body will get used to it. I want to continue taking it and see if it helps. I have not been on it any where near long enough to see any results. Time taken and dosage: 4 days Review:
IC
by Reviewer93467
on July 14, 2009
Sex: M
Age: 53.0 Side effects: bruising, gas, bloating, hair loss, blurry vision Time taken and dosage: 2.5 years Review: had no noticeable positive outcome
IC
by Reviewer93468
on June 23, 2009
Sex: F
Age: 49.0 Side effects: none Time taken and dosage: 1 years Review: I do not take the medication orally. It is given by cathetererdirectly into bladder to lessen side effects. Started once weekly for 6 months, then once a month for 6 months. Has helped tremendously.
I have interstitial cystitis
by Reviewer93469
on June 15, 2009
Sex: F
Age: 47.0 Side effects: Slight hair loss, nothing to write home about. Weight gain. My skin is "clammy" most of the time, and my skin feels "bumpy", like I have acne. Time taken and dosage: 4 months Review: I've been on Elmiron since February, 2009. It has helped me tremendously! I barely have the burning, pressure, or frequent urination, like I used to. I will slowly reintroduce some food/drink items. I'm taking 2 100mg pills, twice a day.
Interstitial Cystitis
by Reviewer93470
on June 4, 2009
Sex: F
Age: 36.0 Side effects: none that I noticed Time taken and dosage: 1 years Review: Elmiron helped me an immeasurable amount. My dr. told me I could stop it after 6 months but since I had the script for 12 refills I took it for 12 months. I have not been taking the elmiron for about a year and my symptoms are back with a vengeance. I cannot sleep at night, frequent urination, urge to urinate persists all day, I'm getting depressed over this, I'm so sick of the bathroom. I don't know why he told me to stop it. If I'd stayed on it I don't think I'd be going through this right now. I'd rather lose ALL of my hair to just be able to sleep again w/o feeling like I have to pee!
IC
by Reviewer93471
on April 24, 2009
Sex: F
Age: 67.0 Side effects: I was on this medication 3 years ago,after 6 month I noticed blood in my stools which stopped after I discontinued the medication. My Urologist put me back on Elmiron 6 month ago and for the last two weeks I'm back to having blood in my stools.I stopped the medication as of today. Too bad as I think it was helping me.I am also experiencing hairloss. Time taken and dosage: 6 months Review:
IC
by Reviewer93472
on April 13, 2009
Sex: M
Age: 45.0 Side effects: Constant burning, extreme bladder pain. Time taken and dosage: 7 years Review: After spending over a year trying to determine what the problem was- waiting 6 months or more for Elmiron to work was hard. Now, seven years later, I live a normal life- despite the IC. Initially, I had problems with diarrhea. That eventually went away as I learned how to take the drug. Now, two capsules in the morning and I am fine. The only side effect I have noted is when taking Elmiron and aspirin at the same time I have ringing in the ears. I have learned not to take aspirin within four hours of taking elmiron.
Interstitial Cystitis
by Reviewer93473
on April 13, 2009
Sex: F
Age: 59.0 Side effects: Nausea, stomach pain, loss of appetite, weight loss Time taken and dosage: 8 months Review: My doctor took me off the Elmiron because the side effects were too severe for me to handle and they persisted the entire time I was on the medication. A real shame, as this is currently the only oral medication we have.
IC
by Reviewer93474
on March 29, 2009
Sex: F
Age: 17.0 Side effects: I was very nervous about starting Elmiron because my doctor didn't seem to know much about it, and everyone keeps telling me that it has horrible side effects. I have felt like I'm starting to loose hair but that could just be all in my head. I have for sure almost everyday felt very sick to my stomach since I've started Elmiron, and today I've had horrible diareah. It's been dreadful and from what I've read others have had this annoying side effect. My head hurts just about every morning and a couple of times its been unbarrable. Time taken and dosage: 4 weeks Review: Elmiron has seemed to have helped my blatter a noticable amount. I don't bleed from my blatter everyday like I use too, but it hasn't completly gone away either. The burning has been completly gone but it does still feel sore quit offten.The side effects may be too much for me to be able to stay on it much longer, but i'm trying to deal with it since this seems to be the only option for IC
IC
by Reviewer93475
on March 3, 2009
Sex: F
Age: 50.0 Side effects: None so far Time taken and dosage: 9.5 years Review: Elmiron has changed my life -- I've been taking it for almost 10 years now and although I originally took 4 100 MG capsules per day, I've been able to reduce that to 2 100 MG every morning about an hour before eating. It takes at least six months to begin working. If you stop taking it, it takes about 6-10 days before you notice, but trust me, you WILL notice, as within 6-10 days of stopping, the burning, frequency and pain will return. I faithfully renew my prescription and get seen yearly by my IC specialist. As long as there are no long-term side effects, I plan to take this the rest of my life.
ICS
by Reviewer93476
on February 26, 2009
Sex: F
Age: 61.0 Side effects: I have taken it for 5 years. In December my blood pressure started climbing (always had very low blood pressure), I began having terrible headaches, dry eyes, cataracts, dry skin. An MRI of brain showed some unusual changes from dryness. We are presently investigating this. This medication cured a lifelong problem I have had BUT now I am in real trouble. Will post any information that I obtain. Time taken and dosage: 5 days Review: For years I was treated for bladder infections. Frequent urination was my daily routine. Elmiron stopped this within weeks. I have not had another one until December when all the other health problems surfaced. I think it works but it may be drying out other vital areas.
IC
by Reviewer93477
on February 1, 2009
Sex: F
Age: 42.0 Side effects: headaches early on, gas and stomach cramping, disturbed sleep, then after a couple of months moodiness Time taken and dosage: 3 months Review: Initially I loved the relief I got from this drug, despite the headache that comes after first taking it (more water does help) but the gut issues seem to be getting worse and as embarrassing as blatter problems were. I appreciate all the input on this page, will try eliminating the capsules.
Interstitial Cystitis
by Reviewer93478
on January 27, 2009
Sex: F
Age: 36.0 Side effects: Hair loss/thinning, bloating, skin issues. Time taken and dosage: 4.5 years Review: I've taken Elmiron for about 4-1/2 years. I was just given the green light by my gynecologist to stop taking it due to hair loss. She said that I've taken it long enough where my bladder lining should be built up enough. I'm nervous about stopping it for fear of going back to the way I was feeling, but I'm anxious for my hair to grow back. Time will tell!
IC
by Reviewer93479
on January 24, 2009
Sex: M
Age: 64.0 Side effects: severe headache, nosebleed, red blotch on cheek, tiredness severe, nauseau, mental mood change Time taken and dosage: 14 days Review: |
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