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TOPAMAX (TOPIRAMATE) reviews and ratings reportsThe average rating for TOPAMAX (TOPIRAMATE):
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Key to ratings for TOPAMAX (TOPIRAMATE): |
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If you want to share your experience on TOPAMAX (TOPIRAMATE) please, specify the following details: 1 Sex. 2 Age. 3 Side effects. 4 Time taken and dosage. 5 Review. |
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Migraines
by Reviewer23424
on July 5, 2010
Sex: F
Age: 29.0 Side effects: Extreme weight loss!! I look emaciated and everyone thought I was on drugs! My Dad thought I had cancer thats how skinny I became. Complete and total loss of appetite. I had to stuff food down my throat which didnt help the weight loss. The weight loss died down though after about two years or so. Maybe more a year and half. Now I am as big as a house. dont think its because of the Topamax. I am currently coming off of Topamax. All the way down to 25 mg! I started at like 100 mg which isnt much, but its what I was on. Time taken and dosage: 5 years75mg 1X D Review: Go off Topamax slowly! You get massive headaches when you are going down. I suggest you even cut it in quarters if you have to. 
Migraine Headaches
by Reviewer23425
on July 4, 2010
Sex: F
Age: 41.0 Side effects: Numbness and tingling of extremities. Brain Fog mild to severe that eventually cleared up as I was stepping up my dose. Once I reached my maintenance dose had thoughts of suicide at times of severe stress from job. Never had this happen prior to taking this drug. After being on Maintenance does for another two months starting having symptoms similar to IBS and Diverticulitis with severe pain in lower left quadrant. Time taken and dosage: 6 months200mg 2X D Review: Migraines also came back. Started tapering off medication. After googling Topamax and IBS. I thought I had diverticulitis again the pain was so bad and considering last time I had to have 13 inches of my colon removed this was not a pleasant thought(I have IBS) Dropped 18# in two weeks. Not very pleasantly I might add. I was so miserable that despite recommendations I stopped tapering and just quit taking the drug 4 days ago and finally feel half way decent. Seriously I think the daily migraine is better. 
migraines
by Reviewer23426
on June 30, 2010
Sex: F
Age: 47.0 Side effects: tingling feet and hands, severe insomnia, loss of words and other memory problems, hair loss, speech problems, initial hyperactivity and a huge jolt in libido Time taken and dosage: 2 months50 mg 1X D Review: Ive had migraines since I was 12 and have tried nearly everything. Botox was working well until it caused my eyelid to droop. Started with 25mg 1x/day for 2 weeks, now at 50mg 1x/day at bedtime. 50mg has cut back migraines from 3-4 week to maybe 1 a week, except for menstrual migrianes. My problem is Ive always had trouble with insomnia and take 100mg Trazadone + 10mg Cyclobenzaprine at bedtime to help with that. Im sleeping 3hours and waking- unable to go back to sleep. Adding 0.25mg Xanax dosent help. Can take Ambien and sleep about 6 hours, but its not a restful sleep. Does anyone take Topamax in the AM to help with insomnia?
migraines
by Reviewer23427
on June 30, 2010
Sex: F
Age: 24.0 Side effects: Felt like a zombie, exteme tiredness, loss of energy, vivid dreams, and difficulty thinking/concentrating. Time taken and dosage: 9 days25 mg 1X D Review: Did not help headaches and made me feel out of it. Would not use again.
migraine
by Reviewer23428
on June 27, 2010
Sex: F
Age: 37.0 Side effects: mild numb and tingling sensations, appetite suppression,dizziness, fatigue at first, taste changes Time taken and dosage: 2 months50mg 2X D Review: Side effects have really been pretty mild for me, and when compared to the constant pain of daily migraines, the trade off for me has been worth it. The numbness and tingling sensations have been transient, only lasting 15 minutes or so at a time, Ive lost maybe 5 lbs in the 2 months Ive been on it so that isnt terrible either. Soda started tasting awful once I hit 75mg, but it isnt any great loss to me not to drink it. The dizziness and fatigue happened for a couple of days each time my dosage was upped then went away. I started at 25mg at night for a week, then 25mg morning and night for a week, then 50mg at night, 25mg in the morning for a week, now Im at 50mg morning and night. I would take the mild side effects I experience any day over the severe pain I was suffering on a daily basis. This has been a little wonder drug for me. I feel like I have a life back again.
migraines
by Reviewer23429
on June 26, 2010
Sex: F
Age: 31.0 Side effects: decreased appetite, weight loss, initial bouts of insomnia, word finding difficulty, mood changes, mild tingling in lips, hands and feet. Time taken and dosage: 2 months100 mg 1X D Review: All in all, Topamax has really improved the quality of my life. I went from having several debilitating migraines a week to a couple of mild migraines a month. Sure, the beginning was a little rough.especially with the insomnia and some mood changes. But, things seemed to have leveled off and Im back to really enjoying life. The only side effect that I still notice is decreased appetite. And Im not complaining about this.Ive lost 10 pounds of baby weight in two months and I feel great! Food still taste good, Im just not hungry quite as often. 
bipolar disorder
by Reviewer23430
on June 25, 2010
Sex: F
Age: 29.0 Side effects: slight emotional dulling, hair thinning Time taken and dosage: 8 months100 mgs 2X D Review: I was diagnosed as a mild case of bipolar several years ago and have really struggled with the med-go-round. After horrible luck with a previous med I was really afraid to be put another anti convulsant. But in the end, this stuff is really, really good. My mind doesnt race, my anxiety is that of a normal person;) and I honestly feel like me again.I do feel a little dull at times, but a brisk walk or a red bull helps. My hair is thinning, but Ill just put in extensions and live with it. Theres a lot of bad opinions floating around about this med, but you may be lucky like me!
Migraines for 30 yrs. Run in family
by Reviewer23431
on June 22, 2010
Sex: F
Age: 47.0 Side effects: I have only been back on for 5 days. I am supposed to be up to 300 mg per day in a little over two weeks, but already the horrible pins and needls and the TWITCHING has started back. Time taken and dosage: 5 days100mg 1X D Review: Using topamax last year getting 3/4 migraines/WEEK. Dropped back to 2/3 a wk. Impressive because my migraines r HORRIBLE. Dr started me on 50 mg/day & went up. Was just at new pcp and the PA looked at the bottle I brought & wrote script sort of same way. (Been out for a while.) Wrote a 10 day supply. Didnt bother to fill. Went to new neuro & wrote new script cause he thought it was weird what she wrote & gave to me. Had to ?? him on how to take it (you know NOBODY EVER starts off taking a full dose). Started by giving 100mg PM 1st wk, 100mg PM & AM 2nd wk then 200mg PM & 100mg AM 3rd wk as full dose. WAY TOO MUCH WAY TOO FAST? Woke this AM & HEEL was acutally ASLEEP. I dont think I have ever had THAT feeling in my life! Right eye TWITCHING again. Last time it started twitching called my old neuro when it started twitch for over 5 min/time (even vid taped it) & she said that didnt think it was connected to the topamax! MY GOSH.Do a search of topamax/twiching & see what comes up & how common it is. How on earth can a NEUROLOGIST NOT BE AWARE OF THIS? I think this is outrageous! If you ever become more well read than your doc. GET A NEW ONE! They are only as good as their education. If they dont stay up to date they are worthless. I am not saying dont do YOUR homework. I am just saying they darn sure better be doing theirs, too! Do research, ask them, if they dont know the answer, they should be willing to FIND OUT and
Migraines, chronic daily headaches
by Reviewer23432
on June 17, 2010
Sex: F
Age: 42.0 Side effects: Fatigue, head twitches, memory loss and overall intelligence lowering Time taken and dosage: 5 years300 mg 1X D Review: Wow. I came upon this site to look for another drug and I just now realized how many side effects I have that may be linked to Topamax. Its the only thing that keeps me functioning though without a daily migraine. And I have to be at work in order to pay the mortgage. I seem to take a lot higher dose than most of you. 300 mg. I take 100 in the morning and 200 at night. Everytime I try to wean back, the migraines hit me like bricks. I didnt even know for 4 years (and a 20 lb weight gain) that Topamax was the cause of my fatigue. I see the best specialist in town too. I guess he wasnt up to sharing that little side effect. I have kidney stones now (seven to be exact) after 5 years, not sure if this drug is the cause or another. I honestly cant wait until something new hits the market that works. I have tried them all over the last 20 years.
Fibromyalgia
by Reviewer23433
on June 16, 2010
Sex: F
Age: 56.0 Side effects: Word finding problems, which are part of the Fibro Fog caused by Fibromyalgia already, were greatly increased. Difficulty in concentrating and focusing. Initially had weight loss, which leveled off after first year on the drug. Time taken and dosage: 4 years200 mg. 2X D Review: Topamax has taken away all of the flare-ups with my fibromyalgia. I have had only one major flare-up in the past 4 years, and that was after a medical procedure. To not have the weeks-long and months-long flare-ups in my pain levels has greatly improved my quality of life. Unfortunately, the cognitive deficits have gotten so bad that I need to stop the drug because I can no longer think straight or remember things.
Migraines
by Reviewer23434
on June 13, 2010
Sex: F
Age: 20.0 Side effects: Numbess and Tingling in hangs, arms, legs, and feet. Memory loss/mild blackout, complete loss of appetite, weight loss, taste change in food, becoming very tired and never being able to sleep at night, and slight depression. Time taken and dosage: 2 weeks50MG 3X D Review: The sad thing is, I have been taking topamax since high school and the dosage has gone from 25mg to 150mg over the years i have never really had any problems with the side effects until now. The Topamax does help control my migraines though, so hopefully these side effects arent a long term thing
severe migraines/TTH since age 10
by Reviewer23435
on June 11, 2010
Sex: F
Age: 30.0 Side effects: i have not really experienced any side effects yet, i dont think. i just seem to be a little more tired than usual Time taken and dosage: 2 weeks25 mg 2X D Review: i have only been takin this for two weeks and took only 25 mg at bedtime for 1 week now i take 25 mg at bedtime and also in the morning. i dont think i have experienced anything from this medication yet, good or bad. i am a big time diet coke and coffee drinker and they both still taste fine to me. i do have a little tingling in my nose every now and again that lasts for maybe a few seconds and goes away, and i have sent a few text messages that made no sense on any planet. but after having suffered from migraines and tension type headaches for the last 20 years and just constantly feeling like i would like to slam my head into a brick wall, i am going to stick with this for a couple months and see what happens. a couple of my girlfriends had taken this in the past for migraines and had great results as far as the migraines tapering. i did watch them suffer through some memory problems and too much weight loss for their already tiny frames, but we shall see what happens.
migraine/cluster headache
by Reviewer23436
on June 6, 2010
Sex: F
Age: 29.0 Side effects: at first I had numbness in my fingers and toes, under the eyes, and lips. tiredness (but was ok since I took it at night), loss of menstrual period, carbonated beverages taste like metal.which is ok because theyre full of calories anyway! Time taken and dosage: 6 months100mg 1X D Review: I had never had any problems at all until all of a sudden out of the blue I got migraines and visual disturbances like nobodys business. The Dr put me on Topamax gradually, and I experienced a lot of the initial side effects that a lot of people are posting on here.but with the gradual increase mine were very manageable, and if the tingly fingers became too much, my Dr. didnt increase my doseage as planned, but waited until my body was ready. We worked together to find my correct dosage, and are discussing my BMI (Im a small framed woman) because I have lost some weight on the drug. Hes concerned that I need to decrease the dose now that my side effects have diminished and I havent had a headache in a couple of months. I really feel like my Topamax experience has been successful, not perfect -- because its a try-it-until-you-find-whats-right-for-you kind of drug -- and my Dr. has been very clear about managing my side effects and NOT having me on any doseage thats causing me any impaired functions. I know everyones experience is different, but I have been pleased with how my Dr. has handled mine. I know that its not in our plan for me to stay on Topamax, but to gradually decrease until hopefully I dont need it anymore. Good luck to those searching for help!
intractable migraines
by Reviewer23437
on June 4, 2010
Sex: F
Age: 46.0 Side effects: loss of feeling in my hands, band headache, stabbing pain in my toes, chest tightening, severe abdominal pain lasting for days, slurred speech, constipation Time taken and dosage: 2 weeks 2X D Review: I have horrible migraines but Ill take them back and try something alternative to get off this horrible drug! I had the worst abdominal pain in my life due to severe constipation, couldnt feel either of my hands, had chest pain, leg pain and stabbing pain in my toes. What a terrible experience!
Mirgarine
by Reviewer23438
on June 1, 2010
Sex: F
Age: 45.0 Side effects: Horrible taste in my mouth, like metal or blood all the time! I have been so tired for months it is a nightmare. I lost 15 lbs, cant eat everything tastes so bad. Yes it worked on my headaches but i have to come off of this drug. Cant, eat, think clearly, work well etc. Time taken and dosage: 8 months100mg 1X D Review:
depression, mood stabalizing
by Reviewer23439
on May 31, 2010
Sex: M
Age: 30.0 Side effects: increased tingling (meaning pins and needles) in feet/legs/arms if i sat weird for periods of time (i became more aware of my posture to prevent it). soda=flat taste, weight= lost 15 pounds, appetite = slowed at same rate my thinking did. Had to increase prozac to fight INCREASE in depression at 200mg/topamax Time taken and dosage: 5 months200 mg 1X D Review: Now that Im one week off of topamax, all the prozac figit-ness is back full force at night now that topomax isnt there to muffle it any longer. I like having a quieter body from the topomax - meaning taking down the - i gotta jiggle my leg,cant stop moving motor-movements - i didnt realize i got so used to with just prozac alone. however, topomax also muffled my intellect. After discontinuing the drug 5 days ago Ive noticed,coinciding with my bodies rise in activity and motion and restlessnes, which I didnt miss at all, came a rise in speed-of-thought, word-recall, anetdotes and stories. They all seem like they flow instantly from my mind to my mouth unlike the gradual softening and slowing and quieting I had experienced the past 5 months Ive been on topomax 100 (about 2 months at that dose), then 200mg/day. Now off of it my old personality is shining thru again, and I hadnt even realized it was so gone until i started coming OFF the topomax and saw it return. A night and day difference there, really. Overall though, to be honest, I didnt really mind being slower, less funny, less energetic, because I felt more comfortable . like the topomax made me ride like a cushy Cadillac (no gunning it at a green-light or fast corners can be taken!), while back to my old self again feels like a sports car (quick throttle, can turn on a dime, but the ride is rough as hell - not made for cruising and youre tired after drivi 
bad headaches, migrain family
by Reviewer23440
on May 31, 2010
Sex: F
Age: 59.0 Side effects: saddness, not suicidal but loss of interest in life, crying, loss of appetite, loss of volcabulary, tingling arms and feet, severe muscle pain all over body, and HAIR LOSS! Time taken and dosage: 6 months60 mg 1X D Review: started at lower dose that helped with headaches but did not eliminate, raised to higher dose. Relieved headaches but the side effects are too much to take. I will slowly decrease the dosage and see if I can live with the headaches. I have no emotion left but sadness, (and I have a wonderful life).
Migraines
by Reviewer23441
on May 31, 2010
Sex: F
Age: 23.0 Side effects: Panic attacks, complete loss of appetite, excessive anxiety, tingly fingers, hands, and toes, memory loss, loss for words, manic talking, more :( Time taken and dosage: 2 weeks25mg 2X D Review: I took this drug before I had my son, whom is now 10 months now, for migraines about 1 year ago for a few months and I never knew what all my symptoms were until now I started taking it again, I think now Im a Mom and care more about myself and am more observent so I noticed my fingers, and my anxiety was just thru the roof, and driving me, and my POOR fiance and family crazy! Ive been literally FREAKING out and threatening him so much! Its been so bad! My hands have been getting SO tingly today that they HURT and I have to stop moving my hands so they dont hurt anymore, it affected me at work also. When Im at work my memory is different and Im lost for words, and I am the lead nurse so its weird for me to feel that way. Im a new Mom and I cant even be a Mom because my anxiety is so insane!!! All I have to say is this medicine has messed up a lot in my life!!! I am tapering off now!!! Without any Dr!! UGH! Thanks for all your tips! I didnt know it was this damaging, until I read this website!!!!
migraines
by Reviewer23442
on May 27, 2010
Sex: F
Age: 43.0 Side effects: Terrifying drug that will someday be seen as medievally primitive. Suicidal insanity crept up on me gradually. My doc said most people take this with no ill effects. I was not clinically depressed before taking it to prevent migraines. Yet still I became so unlike myself, suicidal thoughts and full of rage, I realized I COULD NOT GET OFF IT QUICKLY ENOUGH! IF THIS IS YOU, JUST QUIT THIS DRUG NOW--DONT WAIT--THIS IS *NOT* THE REAL YOU--YOU WILL GET TOTALLY BETTER!! Time taken and dosage: 2 months100mg 1X D Review: I tapered off in 2 nights--down to 5Omg on night 1, 25 on night 2, then no more Topamax. I had no seizure, but I was willing to risk it--so I just stayed home for a few days. Withdrawal is harsh--2 to 3 weeks--but trust in a sacred life force, and trust my word, you will get through. Plus, withdrawal is still a better mental zone than on Tope. On day 2 it felt like a glass jar popped off my head--ahhh! Good! But then I had near-total insomnia for 6 days, trembling, and diarrhea (a nuisance). Suddenly then I slept for almost 3 days straight. My mood gradually returned to normal and I felt like me after 2 weeks, though very shaken and upset by what had happened; I felt normal and controlled at 3 weeks. Every bad moment of withdrawal, remind yourself This is *not* the real me, I have been poisoned and am now detoxing. Have faith, love yourself :)
Bipolar-TypeII/migraines
by Reviewer23443
on May 25, 2010
Sex: F
Age: 33.0 Side effects: Common words are missing from my vocabulary. Its like a hole in my thinking. This gets worse the higher the dose. At 200mg Im an idiot. After this long on the drug I now have chronic abdominal pain. Time taken and dosage: 5 years100-150 1X D Review: At least the migraines are gone. The costs totally outweigh any benefit beyond the 100mg dose, at least for me. At 100mg the occassional migraine sneaks in, but at least I can function. Its a balancing act.
cluster headaches
by Reviewer23444
on May 24, 2010
Sex: F
Age: 41.0 Side effects: Really the only side effect I have had has been that carbonated sodas taste flat.and I needed to stop drinking those anyways. Time taken and dosage: 3 years50 mg 1X D Review: Best thing the doctor ever did for me. I was suffering from cluster headaches for 7 years prior to taking the topamax.
Migraines
by Reviewer23445
on May 23, 2010
Sex: F
Age: 45.0 Side effects: Initially lost 20 pounds (gained it back when my thyroid slowed down). Memory loss, losing a word here and there. Not as sharp as I used to be. Inability to concentrate/focus at times. Initially had the tingling and change of taste, but that mostly has gone away. Still get some tingling every now and then. Started out at 50 mg, then was upped to 100 mg last year but backed off to 75mg as 100 mg made me really sick. Time taken and dosage: 6 years75 mg 1X D Review: I had 4 to 5 migraines a week. This medicine pretty much saved my life. Ive been on it for so long now, Im starting to be concerned about long term side effects, as there are no real studies on it.
Migraine
by Reviewer23446
on May 22, 2010
Sex: F
Age: 40.0 Side effects: Tingling hands, feet and face, loss of appetite short term, altered taste of food short term. Time taken and dosage: 1 years100mg 2X D Review: Never had Migraines before a year ago when they suddenly appeared and changed my life forever. Finally prescribed Topamax and cannot live without it. If I forget to take it my day is miserable. My short term memory loss I have now is nothing compared to the cognitive impairment I was experiencing without any treatment. I would not take myself off this for anything unless assured there was something better on the market. I do suffer from days where I need more than the dosage I am on and wonder if they are getting worse and should I take more but that just brings on more tingling hands and face. I have lost weight, I do have more energy because I feel a lot better than used to. I am no longer on antidepressants, I actually have periods regularly which is strange as a 40 year old with PCOS. This seems in complete opposite to most on this site, but I love this stuff. Its not perfect, but Its so much better than where I was.
migrine
by Reviewer23447
on May 20, 2010
Sex: F
Age: 57.0 Side effects: leg cramps, anxiety, trouble sleeping at night, hair loss, weight loss, memory-brain cell loss, dry skin, eye pain, severe migraine when I do get one Time taken and dosage: 6 years50 1X D Review: 6 years ago I started out with 25 mg and worked up to 100mg. The worst side effect was anxiety, it was major! I went down to 50mg. Ive been on it since then and cant believe the change in my life. Just last week I went back up to 75mg, because my headaches have started to come back again. I didnt know some of my side effects were the same as what others were having. Would I still take it if I knew about all the side effects? YES-the side effects are worth the cure. Both my daughters are on it. Just go on a lesser dose when your able to.
Severe Migraines
by Reviewer23448
on May 19, 2010
Sex: F
Age: 41.0 Side effects: Diarrhea, abdominal pain, hair loss, insomnia, groggy Time taken and dosage: 1 months75 mg 1X D Review: At first it was wonderful. Topamax DID take away my migraines but the side effects were too much to handle. My hair began really falling out (I already have Graves disease which makes my hair fall out so this was awful!) and the diarrhea kicked in about week three and it was constant! The abdominal pain was awful. I have horrible insomnia as it is and I was just starting to get THAT under control when I started Topamax and then suddenly I was up two and three times a night again. I experienced a loss of energy during the day as well.
Migraines
by Reviewer23449
on May 18, 2010
Sex: F
Age: 24.0 Side effects: loss of appetite, memory problems, word recall issues, slurred speech, mood swings, weight loss Time taken and dosage: 2 years25 1X D Review: I started Topamax about 2 years ago and been suffering from Migraines for 4 years. First I was on Verapamil, but when that didnt work my neurologist switched me to Topamax. At first I was beyond excited; I thought it was a miracle drug. I could have hugged my doctor. Topamax allowed me to complete my job without multiple absences; it gave me hope. Then my doctor increased my dose to 50mg- I started suffering from terrifying mood swings and horrific depression. Within a week I was back to 25mg and have been on that ever since. While this medicine does do wonders for my Migraines (have cut them down to one every couple of months), its side effects are hideous. The memory problems have gradually come on and within the past couple months Ive started experiencing slurred speech and severe recall issues. Where there was brain fog before, now there is a solid wall. Since Im in graduate school, the drop in IQ is taking a severe toll on my performance. Im currently searching for an alternative.
Topiramate
by Reviewer23450
on May 18, 2010
Sex: F
Age: 26.0 Side effects: At first the only side effect I experienced was tingling in my hands which resolved quickly. The medication was actually quite effective and my migraines decreased drastically. After being on the 150 mg dosage for about 6 months, I experienced a PANIC ATTACK. I CALLED 911 BECAUSE I GOT DIZZY AND COULD NOT BREATHE ALL OF A SUDDEN WITH SEVERE CHEST PAIN,about an hour after taking my meds one night. I had never had a panic attack before and had no history of anxiety. Wasnt even feeling nervous or upset that day. I knew something was not right. I knew the medication could cause anxiety and thought this might have been the cause of the attack. I asked my neurologist and she said no way, any problems would have been experienced within the first month. After the attacks continued every single night (an hour after taking my meds) for almost a month, I insisted I be tapered off of the medication. Within one day of being off of it the panic attacks stopped. Now I have to deal with the Time taken and dosage: 7 months150 1X D Review: I dont want to discourage anyone from taking this medication since it helped me so much with the pain. I just wish this side effect was more well known so my doctor could have identified it sooner and i wouldnt have been having multiple panic attacks every night for that whole month, losing sleep and being nervous I would wake up with one. Please be aware and if this side effect happens to you insist on getting off of the drug!
Migraines
by Reviewer23451
on May 12, 2010
Sex: F
Age: 36.0 Side effects: Tingling in finger tips; numbness/tingling in feet; memory impairment Time taken and dosage: 3 years150 MG 1X D Review: I started slowly on Topamax for everyday headaches/migraines. I was on 100 MG for years, until my most recent visit, when they increased me to 150 MG, because I was still getting headaches nearly daily. Since starting on the increased dosage, I have hardly experienced any headaches, and the ones I do have are sinus headaches. The side effects are worth it for the relief of the headaches. I do admit that the memory is probably the worse, but for now, I will just blame that on old age. I notice that I will forget things like peoples names and common things that you should remember, but I still do fine to function at work. I already recommend this Rx to all my friends and family, because a lot of them are headache sufferers!
Migraine Prevention
by Reviewer23452
on May 11, 2010
Sex: F
Age: 42.0 Side effects: Since being on this medication I have been dizzy, my taste for food has totally changed and I find myself feeling nauseated after eating. I am always tired feeling. I have stomache pain constantly and so far I have not lost any weight. Time taken and dosage: 2 months50 Mg 1X D Review: When I was first put on this medication, my doctor started me out on 25 mg once a day for two weeks and then bumped me up to 25 mg twice a day. Aside from all of the side effects, I have not experienced a major migraine since being on this medication which is a big plus. I am going to check with my Neurologist though to see why I am experiencing so much stomache problems, (constant burning in stomache)and see if I can be dropped back down to 25mg a day.
Seizures and migrains
by Reviewer23453
on May 8, 2010
Sex: F
Age: 23.0 Side effects: Tingling in feet and hands, anxiaty, depression Time taken and dosage: 6 months100mg 2X D Review: I have not had a seizure since I have bn taking topamax and my migrains have vanished. Both are related to head trauma results from a car wreck. The tingling and anxiaty. Depression. Its ending up like all the other seizure meds ive tried (i dnt take thm like I shld bc the side effects).
Migraines
by Reviewer23454
on May 7, 2010
Sex: F
Age: 46.0 Side effects: Depression, anxiety, weight loss, confusion, difficulty concentrating, loss of ability to function, extreme fatigue, weird sense of taste. Time taken and dosage: 60 days100 mg 1X D Review: I was started on Topamax at 25 mg and titrated up to 100 mg to control migraines, but I got progressively sadder and more confused as time went on. It was debilitating; I work as a freelancer and actually lost two commissions because I simply couldnt motivate myself to finish the projects and couldnt concentrate on my work. I lost any interest in my work, my family or even crawling out of bed in the morning. I felt horrible! I could tell myself intellectually that nothing was wrong, but for no reason I would be swamped by an overwhelming feeling of sadness and begin to cry for no reason. I wanted to do nothing but crawl into bed and sleep, which is what I did most days.Some days I actually forgot to eat until dinner time and I lost 15 pounds in three months, which would be fine if I was eating healthy, but I was simply forcing food down at the dinner table to survive. The last straw was when I locked myself in the bathroom and cried for two hours. My husband was frightened and called my neurologist, who immediately took me off the Topamax. Im praying that he is right and Ill feel better within the next week. I would rather have the migraines than live like this.
Bi-polar
by Reviewer23455
on May 6, 2010
Sex: F
Age: 50.0 Side effects: Severe pins and needles in feet and hands, all my joints started hurting all the time. The only good thing was that I lost 10 lbs in 2 weeks and my mania was controlled by this med. But the benefits of the drug didnt outweigh the side effects and I still have the pins and needles in my feet and I dont know when or if it will ever go away. Time taken and dosage: 6 weeks50mg 1X D Review:
Bipolar Disorder
by Reviewer23456
on May 5, 2010
Sex: F
Age: 26.0 Side effects: Decreased appetite, tingling in fingers and toes occasionally Time taken and dosage: 2 weeks75 mg 2X D Review: Calmed my hypomania down right away, better than the risperdal that I took previously.
Neuropathy
by Reviewer23457
on May 5, 2010
Sex: F
Age: 31.0 Side effects: Memory Loss,extreme twitching,bad spelling,what i describe as electrical jolts thru my body,loss of appetite,hairloss,it feels like I am borderline bipolar,depressed,in horrible pain.it has made my pain worse than it already was. Time taken and dosage: 21 days200 2X D Review: This medication is horrible. I am going to my doctor tomorrow morning to get off of it. I have not been on it long but I have noticed that it has made me feel horrible. I do not enjoy my children and husband anymore but atleast I am still sane enough to notice these things. I have failed neurontin,lyrica and just about everything else and I am currently waiting to have a neurostynulator put into my back to help with my pain.
bulemia and bipolar II
by Reviewer23458
on May 4, 2010
Sex: F
Age: 34.0 Side effects: tingling in hands and arms, loss of short term memory an sense of direction, some hair loss, b12 deficiency(also because I am a vegan) Time taken and dosage: 10 years150mg 2X D Review: overall, I feel the drug has helped me with my bulimia tremendously. I would never come off of it. I am in the process of lowering it to 200mg just bc of the memory loss. I do need to keep it at the 200mg level to maintain NOT binging and purging. In the past when i dropped to 100mg i went right back to destructive behavior of binging and purging and my bi-polar mood swings. I would rather suffer with some memory loss and direction loss than that.****OH TO ALL THOSE PEOPLE WHO ARE LOSING YOUR HAIR BUY VITAMIN H AKA- BIOTIN. IT WILL RESTORE YOUR HAIR. ALL SEIZURE MEDS AS WELL AS ANTIBIOTICS CAN MAKE ONES HAIR FALL OUT OVER TIME. THE VITATIM H IN BIOTIN WILL RESTORE IT. I USE IT AND IT WORKS. I AM A WOMAN WITH LONG HAIR AND I AM 34. JUST GOOGLE IT AND YOU WILL SEE. GOOD LUCK TO YOU ALL. 3
migraines,binge eating
by Reviewer23459
on May 1, 2010
Sex: F
Age: 38.0 Side effects: loss of appetite, weight loss Time taken and dosage: 14 days25mg 2X D Review: This is amazing!!! I havent had a headache or had an eating binge since day one!! My mood is better! My family can see a difference in my attitude. I feel like a new person! I cant wait to see my Dr. and give her a big hug!!!
Migraine Prevention
by Reviewer23460
on April 28, 2010
Sex: F
Age: 44.0 Side effects: I had full side effects - dizzy, nausea, no appetite, lose of taste especially soda (almost like a chemical taste), flu like symptoms, thought/sight/smell of food made me sick, loss of balance, confusion, disoriented, loss of memory, loss of thought, could put speech together, HORRIBLE stomach pains, Diarreha, headache-migraine, tired, fatigue, muscle pain. MENTALLY & PHYSICALLY INCAPACITATED. Time taken and dosage: 5 days50 mg 1X D Review: I have suffered with headaches and neck pain for 20 yrs and tired many, many different meds and was really hoping this would be the one but for me NO WAY. I know someone else who uses it and had no side efeects at all and only gets 1 or 2 migraines a year. I wish I could be so lucky.
Bipolar
by Reviewer23461
on April 25, 2010
Sex: F
Age: 26.0 Side effects: Time taken and dosage: 3 days25 Mg 2X D Review: My face has been tingly and numb. I have been MORE hungry than normal. I am hoping this subsides. Weirdly, beer tastes flat to me. Im not liking this so far even though my mood is stabilized which is its intended use I suppose.
Migraine Associate Vertigo (MAV)
by Reviewer23462
on April 25, 2010
Sex: F
Age: 26.0 Side effects: Depression, decreased appetite, weight loss, sleep disturbance, concentration problems, change in taste of some foods/drinks, dizziness Time taken and dosage: 3 months100mg 1X D Review: I saw some improvement in my vestibular migraines, but I do not think that this drug has been worth taking b/c I am feeling depressed. I started the drug at 25mg a day for two weeks, then up to 50mg/day for a month, then 75mg/day for a month, then to 75mg a day for another month. I was depressed throughout the whole thing and it just seemed to get worse. Now Im tapering off the drug because the side effects are worse than the benefit. If you can avoid this drug, avoid it and consider it a drug of last resort. If youre going to try it, drink lots of water when you take it and throughout the day and keep a diary of any side effects you experience while on it. I should note that I did have a history of depression prior to taking this drug, but I was completely recovered before beginning it. My doctor told me that once I taper off the drug, I should return to normal again within a few weeks.
Cluster Migraines
by Reviewer23463
on April 21, 2010
Sex: M
Age: 36.0 Side effects: Tingling in fingers, depression, carbonated drinks tasted odd Time taken and dosage: 6 months50 mg 1X D Review: The tingling comes and goes but is more rare now. The depression also comes and goes. Ive had to give up soda, it was all I used to drink but they taste awful now. A good thing I guess.It helped with the headaches immensely though.
Mood stabilizer, migraines
by Reviewer23464
on April 21, 2010
Sex: F
Age: 55.0 Side effects: Word loss problems, short-term memory problems, weight loss (extreme at highest dosage), intestinal disorders including acid reflux and diarrhea. Time taken and dosage: 4 years200 mg. 1X D Review: This med. seemed to work for mood and migraines but then I started having side effects that interfered with my quality of life. I tapered off and felt awful. I went back on it and the side effects were too much. I now realize that I had side effects from toperimate that I did not realize were from it until I stopped it. I thought that I was getting unstable (or something like that) so I started it again for about 5 months. It did not help so I am dropping it. The worst thing is that now I feel depressed and in a brain fog. As it works out of my system, I hope that I start feeling real again. I do not have time to feel bad on a drug that is supposed to help. By the way, I gained about 15 pounds back and have nothing to wear because I bought smaller sizes. That is depressing, too. I will not take it again. My dr. never checked me with bloodwork or anything and seemed to think I should just deal with it.
chronic migraines
by Reviewer23465
on April 20, 2010
Sex: F
Age: 23.0 Side effects: numbness and tingling, taste aversions, mild electrolyte changes (according to regular blood work) Time taken and dosage: 4 years50 mg 2X D Review: Have had migraines as long as I can remember, never knew where one stopped and the next one started. Frequent trips to ER just to treat and be semi-functional. Tried countless drugs and treatments. Started taking Topamax when I was 18, took a while to get the dose right (numbness/tingling would be so bad in my feet I would fall, in my hands so bad I would drop things). Continued to go up and down for the first year until we decided 25mg when I woke up was all I really needed. After 6 months, I was migraine free. Still havent figured out a consistent treatment for breakthroughs.nothing seems to help when they hit (save for a trip to ER to be knocked out.otherwise, just an assortment of OTC drugs I call the cocktail to make it tolerable until I can sleep it off). Have had the dosage steadily increased every 18-ish months to counter the tolerance my body develops to it. Its definitely been my life saver. I wouldnt be functioning without it.
migranes
by Reviewer23466
on April 20, 2010
Sex: F
Age: 17.0 Side effects: depression, nausea, dizziness, fatigue, trouble concentrating, appetite loss, and wieght loss. Time taken and dosage: 60 days50 MG 2X D Review: it works to relieve my migranes, but theres alot of side effects that come along with it.
Migraine
by Reviewer23467
on April 20, 2010
Sex: F
Age: 46.0 Side effects: Temporary: Ringing in the ears. Tingling (prickling) in fingers and toes. Long Term: Hair Loss and loss of hair health. Lower immunity. Blurred vision. Irritability. Mental lethargy. Difficulty waking up. Memory issues. Time taken and dosage: 2 years50mg 3X D Review: I have had chronic Migraines for years. I have tried most of the medications available for the prevention of, as well as the releif of the migraine once they do occur. When I started with Topamax I was happy with the results in spite of the immediate side effects of the tingling feelings,vision & difficulty waking in the morning. Soon though I started to notice my hair, which had always been long and thick, started to fall out and dry out. I tried all the commercially available hair products to help with this but nothing really seemed to help. I was really willing to go the distance for a medication that helped with my migraines since the migraines have had such a devastating affect on my life. They didnt help. I didnt lose all of my hair, it leveled off but it has not improved at all. The most disturbing side effect, that I dont read very much about, is the effect on the immune system. As a 46 year old woman who was not ill, other than some stress, I was surprised when I got Shingles. I mean I was shocked. I have always had a robust immune system. I have been catching colds and taking longer to heal from scraches than I usually do. I spoke with my neurologist about this, and the fact that the Topamax doesnt seem to be working as well as it first did. He didnt seem too concerned about the shingles (it was on my side) and didnt have an alternative to the Topamax that I havent tried so he prescribed me a new anti-depressant to boost the effects of Topamax
Headaches
by Reviewer23468
on April 19, 2010
Sex: F
Age: 35.0 Side effects: Loss of memory, vision problems, depression, leg pain, lack of concentration. However, I have tred other medcations and Topamax is the ony medication that ca keep my headace at bay. It does not take it away, but it makes it at least bareable. The doctors cannot find a reason for my headaches and cannot give me a diagnosis so this is the only solution for nw. Time taken and dosage: 2 years175 2X D Review:
Migraine
by Reviewer23469
on April 15, 2010
Sex: M
Age: 48.0 Side effects: Kidney Stones Time taken and dosage: 2 months100 2X D Review: Drank plenty of fluids
cluster headaches
by Reviewer23470
on April 12, 2010
Sex: M
Age: 37.0 Side effects: stupidity - memory loss, trouble forming sentences, finding the right words, loss of concentration, loss of appetite, taste changes, tingling in extemities, lack of energy, confusion Time taken and dosage: 4 months50mg 2X D Review: I recently started back on topamax after a new cluster began. I took this drug 5 years ago and it stopped the cluster after about one month. The side effects can be hard to deal with but no where near as bad as the daily headaches. If your Dr puts you on a 100mg or higher dose to begin with, find a new doc. This stuff requires you to start slow and build up to a dose that works for you. Start with 25mg at night for a week then 25 at night and 25 in the morn after a week, then 25 in the morn and 50 at night for a week, then 50/50 for a while. I was able to drop down to 50mg per day taken at bedtime to limit most side effects and still keep the pain away. I eased off the drug after 4 months and was OK as the cluster had passed and was headache free for 5 years. Im working back up to 100mg per day now since this cluster started and have just has the first 3 days in a row with no headache. I will continue to take the med like I did last time knowing what to expect. I quit drinking carbonated soda (and beer) last time and never started back so no problems there. This med really makes soft drinks taste like crap but the caffine wasnt helping the headaches so it needed to go anyway. The side effects ease up after a while, especially if you can get by on a lower dose. I still keep some triptans around in case of a breakthru headache but I know with the topamax I can survive till the cluster passes and and all the side effects will be gone soon after I discontinue use of the drug
Epilepsy
by Reviewer23471
on April 10, 2010
Sex: F
Age: 19.0 Side effects: Hyperactivity, weakness in legs during running (Ive been running races at least three miles a day five days a week for the last two years), dazed, empty-headed, forgetful, totally high, and lack of concentration Time taken and dosage: 3 weeks75 Mg 2X D Review: Ive had seizures since I was 14, but I wasnt diagnosed until last October when I was I was kicked out of the military for having what I called blackouts, which I now know to be seizures, I have generalized and focal seizures. This is my fourth seizure drug experience (Ive also tried Keppra, Tegretol, and Lamictal), and for me, it was the worst, and that being said, Lamictal MADE me bipolar. But Topamax is taking away my ability to run, which means its taking away my ability to relieve stress, so I really, really hate being on it. That paired with constantly being high and spaced out and being a college student who can no longer focus in class in the final crucial weeks of the semester, Id rather have seizures again than stay on this drug.
mood disorder NOS (low-lvl bipolar)
by Reviewer23472
on April 7, 2010
Sex: F
Age: 23.0 Side effects: Some slurred speech and disorientation; overall okay. Time taken and dosage: 3 years50mg 2X D Review: I was on it for 3 years (ending 2 years ago), low dosage, overall positive. I didnt really notice much when I was on it - a little steadier moods. But when I tapered off, the edginess, intensity, and anxiety that Id been experiencing before taking meds came back. meaning that it had been helpful in taking the edge off my mood swings, anxiety, and depression! Im doing okay without it now, but it worked reasonably well for me. Family history of epilepsy, migraines, and temporal lobe disorder, so it may have just been happenstance that I got a drug that works right on my brain.
migraines
by Reviewer23473
on April 5, 2010
Sex: F
Age: 44.0 Side effects: difficulty with words, spelling, tingling in feet, hands, generally feel stupid at times. When I went to 150 mg a day, became very irritable and emotional and anxious and had to go back down to 100 mg. Time taken and dosage: 2 years50 mg 2X D Review: I have had migraines with aura since I was 11. I am 44 now. I have tried every drug in the book and only Topamax has reduce the frequency and severity of the migraines. I would have 14 migraines a month without, and am down to 2-4 with the Topamax. I dont like the side effect of feeling stupid at times, but if I go off, I go right back to having tons of migraines, so Im just going to wait it out until they finish developing the drug specifically for migraine sufferers that is in the works. Topamax has also reduced the pain, but has done nothing to get rid of my auras. |
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